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Genetic Alliance
4301 Connecticut Avenue NW, Suite 404
Washington, DC 20008
Tel: (202) 966-5557
info@geneticalliance.org
The Hereditary Hemorrhagic Telangiectasia Foundation
HHT Foundation International, Inc.
P.O. Box 8087
New Haven, CT 06530
Tel: (800) 448-6389
hhtinfo@hht.org
NORD
National Organization for Rare Disorders, Inc.
55 Kenosia Avenue
P.O. Box 1968
Danbury, CT 06813
Tel: (203) 744-0100
Tollfree: (800) 999-6673
orphan@rarediseases.org
Sturge-Weber Foundation
P.O. Box 418
Mt. Freedom, New Jersey 07970
Tel: (800) 627-5482
swf@sturge-weber.com
Von-Hippel-Lindau Family Alliance
VHL Family Alliance
171 Clinton Road
Brookline, MA 02445
Tel: (800) 767-4VHL
info@vhl.org
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